We have family who live in Saint Louis, MO so we decided to head out that way for a short weekend trip last weekend. This was really my first "trip" on the diet with Gabe. To make matters worse, Mike wasn't going along to help me. Yikes, I know! I luckily asked my mom to go with me and she gladly accepted. It took me two whole days pretty much to get all Gabe's meals prepared and ready to go. I thought I had it pretty well covered. Boy was I wrong!
We got to Saint Louis and met our family at a little farm restaurant called "Eckert's" and were planning to have lunch. I asked the waitress if she could make Gabe a PLAIN hamburger patty with clean utensils and no seasonings. She said yes that would be no problem and the rest of my family got a buffet style Fried chicken dinner. My aunt, who loves Gabe very much but isn't use to the diet yet, thought it would be ok to give him a piece of fried chicken without checking with me first. After he had already chewed and swallowed it, she asked if he could have a piece and when I freaked out and said no she told me that she had already given him one piece. Oh My Gosh..... I was scared/upset/sick/worried/etc. Everyone seemed to think I was over-reacting a lot about it I think, but it's hard when you work SO HARD to do this diet and then one little thing sets you back. It's really frustrating to Mike and I and we aren't sure how sensitive Gabe really is to things just yet. Has anyone else experienced anything like this? I was so upset. Needless to say, Gabe was fine that day and the next but right when we got home we noticed that his stool completely changed again (it had been the best it's ever been before we left!) and he has been acting crazy again. He is super hyper, pooping a lot, not talking as much, a lot less eye contact, he is playing with toys very inapropriately again, his yelling and stimming are worse than they have been for months....etc. It is soooooo dissapointing, but I guess it really has shown us that the diet WORKS for Gabe. So that is a light in this darkness! Now if only I could know how long this set back will last. I read in Jenny McCarthy's new book that Dr. Kartzinel's son could eat a crouton sized piece of gluten or casein and have a 2 week set back. That seems crazy to me, so I really hope that isn't the case for every kid! Speaking of which, that book is really good so far! If only I had more time to sit and read it. he he
From this experience, we have learned that we can no longer trust going out to eat. We are going to stay in from now on at least for a while. It won't be too hard to do as we have been staying in about 90% of the time we have been on Gabe's new diet anyways. I just think that the risk is too high for cross-contamination in restaurants, no matter how careful the people are. It isn't fair to risk Gabe's health just to go get a fancy dinner that we could make cheaper at home anyways. Lazy me! :)
I hope everyone has a great Father's Day!