Friday, November 19, 2010

Potty Time Diary...weak stomachs beware! :)

  Gabe is 6 years old and we have been working on #2 potty-training for over 4 years now with no success. I have heard from many parents how they so easily potty-trained their kids and got numerous dirty looks when I said, "oh yeah, tried that already." I'm sorry, but don't you think after 4 years that I've probably at least attempted to do an M&M reward system, sticker chart, book reading plan?  lol



Gabe has been # 1 trained for a few years now, so I knew it was just a matter of getting him to realize what I was asking him to do. He knew that putting his pee in the potty was acceptable, but to him poop clearly goes in your pants. DUH!  Yeah, so that was the issue. How does one get a kid with ASD to associate the "feeling" of going with putting it in the potty? We had several times where we would randomly sit him on the potty and he seemed to accidentally go a little, but then he would stop and wait it out until he could go right upstairs and poop in his pants. The worst part is that he would hold it in sometimes for 8 hours just to wait until he got home where he was comfortable. He had to be just miserable and couldn't function as well at school. I mean, who could?

Mike decided to be super dad and google out of the box things about autism and potty training and found several blog sites where moms had given their ASD kiddos pediatric enemas for several days in a row (like 5-8 days) and they just "got-it" after that. Sounds too good to be true, right?  WRONG! Worked like a charm and after about 6 or 7 days of doing the enemas, Gabe was going on his own in the potty. The most challenging part of this was figuring out when he said "potty" (he is very verbally limited) whether he was needing to go #1 or #2. So, for a while we would sit him down every time he went just in case. He now will say potty for #1 and poop for #2. Hey, I'll take it! I am just so thankful that Mike found those blogs about this because I would have never thought this could work and be so simple. I was a little terrified when he said enema because I figured Gabe would fight and scream about them, but he didn't mind them at all and showed no discomfort about getting them. I think after the first one he realized how much it cleared him out and he probably felt like a million bucks after wards!

I wanted to post our success for other moms and dads who are needing something "non-traditional" because you have tried everything else to no avail! It is so frustrating sometimes and it stinks to feel like you are alone. I hope this helps at least one other family. I know it has made our lives and Gabe's so much better in the last few months!

Wednesday, August 11, 2010

Pics of some NuLife samples we tried!

Us eating GFCF Spaghetti and NuLife Foods Beefy Veggy Meatballs



A Closer shot of the spaghetti and meatballs.  :)


 Gabe's favorite.....PIZZA!  He LOVED it.....we added some organic GFCF pepperonis to it. He's a meat eater.   :)

NuLife Foods

 I received an email from a very sweet lady with the company NuLife Foods. I had heard of their products through autism friends, but hadn't had a chance to try any. She offered to send a trial pack of some of their favorite, best-selling products for us to try. I am SO glad and greatful she did. They are WONDERFUL! We got two chicken burger patties, two slices of ultimate cheese pizza (using Daiya cheese), two slices of french toast, 8 squash meatballs, 8 chicken nuggets, and 4 chocolate chip cookies. Literally, everything was wonderful! Gabe loved all of it and he usually is kind of picky when trying new foods. His favorites were the cookies (of course), the pizza slices which look a lot like the school lunch pizzas (only healthy for you!), and the chicken patties. I made GFCF spaghetti and meatballs one night for dinner and it turned out wonderful. The meatballs have squash inside them hidden and they taste wonderful. I couldn't even taste the squash at all, which was surprising. 
All of their foods are gluten free, casein free, soy free, with no preservatives, no additives, etc. Guilt free eating at it's finest!  :)

The best part is that NuLife Foods has been generous enough to offer any of our readers a 10% off discount on their first order from their website!

Here is the link to the website:
http://www.nulifefoods.com/

At checkout you will enter "Gabe10" and receive 10% off. Pretty simple!  I hope you all enjoy it just as much as we did. We are customers for life now!  :)

Saturday, July 10, 2010

Neglect....

Wow, we have had a busy couple of months around here. I feel like I have completely neglected this blog. Sorry, Mr. Blog site!


 In March, we started working on getting Gabe in to an ABA therapy school here and he finally got to start last Tuesday. So far, it seems to be going great. He is getting used to getting up early again and being back in to a routine, which is always good for him. He has his own therapist every day Mon-Fri and they are going to work on all of his areas of need like speech, #2 training, social skills, etc. I really think he is going to LOVE his therapist. She is in her mid-20's and seems so sweet. It also helps that she is a cute blonde. ;)  Gabe loves girls already!

In April, my big "not-so-little"boy turned 6 years old. Wow, how the time flies when you are battling autism! We had his party at a bounce house place that he LOVES and invited a few friends and family to join us. Gabe had a blast and jumped his little heart out.  It was cute when a kid from his class showed up (he has autism, too) and ran up to Gabe and jumped in his seat with him and they just sat there and hugged each other. Gabe was so happy that he came and they ran around together the rest of the night.  :)

 In May, we started Gabe on a couple of new supplements in hopes to get his speech to come back. He regressed terribly over the winter while at public school. I just don't think that any public school has enough funding to help these kids out. They can't afford to get the teachers proper training to really "get" these kids and help them. It's so sad to me...
We started Enhansa finally and wow, it works! Gabe's speech has returned plus some already in just over a month of being on it. We are still increasing the dosage, we went for the low and slow method. I am so grateful that his speech is back and I can only hope it will keep coming. We also started him on CoQ10, Glutathione cream, and 5HTP. We haven't noticed too much with any of these. Maybe because the Enhansa is hard to beat with improvements.  I must say that the first 2 weeks on Enhansa were pretty terrible as far as the die-off symptoms go. He was so cranky and irritable, but I loved it since I knew that he was on his way up, up, up!  :)  Activated charcoals work for that if needed.

  I'm sure there are tons more things going on in our lives that I'm forgetting to mention right now, but I'll close this post with a few pictures that a dear friend, Abby McKinney Photography captured for us last month. If you want family portraits done that really tell a story about your family, then you should check her out. She is the sweetest person and also has a blog site about her family's recovery from autism.  Here is her site: AbbyMcKinneyPhotography.com or   http://mckinneyclan3.blogspot.com/ . Check her out sometime.









Wednesday, March 10, 2010

Karma is a B****.....

So, I was telling (bragging a bit actually) our DAN! dr about how Gabe has been SO amazingly healthy this winter. He got sick for 2 days back in October, but hadn't been sick since then at all. Before starting Bio-med treatments my whole family could attest that Gabe was the sickest little boy you could ever know. He ALWAYS had a cough or runny nose every time they saw him. Now that he has been so healthy I realize how horribly ill he really was and that it was not normal to be that way!

So, of course, you know that since I bragged on him he HAD to get sick....little did I know it would only be 6 hours after bragging to Dr. Justus about it. Yep, we came home and a few hours later Gabe was snoozing on the couch with a 103.7 degree fever. Poor baby was sick for about 3 days with some sort of stomach bug he undoubtedly caught from school. To make matters worse, we were out of town for my cousin's wedding in ST. Louis. It's never fun to have a sick baby, but it's even worse to not be at home! Luckily, he started feeling better by the wedding Saturday afternoon and is back to his happy, smiling self now. Hopefully he won't be sick for a while again now! Or until the next out of town trip we plan........   ;)

Gabe seems to be sooooooo much happier to be back on his GFCFSF diet again. We are still keeping him on low sugar- low carbs and watching the intake to make sure he doesn't get over-loaded. We are thinking about trying a product called Virustop by Enzymedica. Anyone ever tried or heard of it??  I have read some pretty awesome recovery stories that are related to using it. Who knows at this point. There are a lot of different directions to go in, and we aren't sure where we are heading yet!

Friday, February 19, 2010

My First Blog Award!!

Thanks to Erin at Yes, Our Hands Are Full, I received my very first beautiful blog award.  :)  How sweet! Thanks Erin! Check out her blog here:http://schmit-ourhandsarefull.blogspot.com/




The rules for accepting this award are that you first thank the person who awarded you, then pick new blogs that you feel deserve this award and notify them that they have won. So fun! Play along with me!  :)


1. McKinney Clan
2. Autism's Bitch
3. 1-2-3 Autism Free
4. Lauren Furrer
5. Adventures in Autism
6. The World is like a book
7. Injecting Sense
8. Abby's Photos
9. Green and Crunchy
10. Don't bite the dog: Life with an autistic toddler
11. The Wellness Philosophy Nutrition Blog
12. Love Veggies and Yoga




~7 Things to know about me~


1. I LOVE my son more than anything in this entire world.
2. I am about 2 months away from having my cosmetology license
3. I love sports and being active
4. I love warm weather and beaches; do not love winter/cold weather
5. Autism is a battle that has made Mike and I's relationship grow closer
6. I am a night owl in a morning person's world
7. I consider myself a pretty friendly and out-going person. I love people!




:)  :)  :)

Monday, February 15, 2010

Cashew Butter Reese Cups :)

Thursday night I decided to try a recipe that a friend recommended to us for Almond butter Reese Cups. I wanted something to send in for Gabe's Valentine's Day party at school Friday. Reese Cups are Gabe's all time fav. candy. He LOVES peanut butter and was very sad when he couldn't have it anymore due to his sensitivity.

Instead of almond butter, I decided to try salted, cashew butter with the enojy life allergy-free chocolate bars and semi-sweet chocolate chips. I melted the chocolate over the stove for a few minutes in a saucepan and then poured the first layer in muffin cups. Stick them in the freezer for about 10 minutes until hard and then add a tsp of your favorite nut butter and then cover the nut butter with more chocolate. Freeze again until they are hardened and wrap individually with saran wrap! I stored them in the fridge, not sure if they would go bad otherwise. I assume they would. Gabe LOVVVVVVVED them. He was SO thrilled to be getting candy again and had chocolate everywhere after. Little does he know that it's healthy candy!  :) I love moments like that!

Here is a picture of them! They turned out great and were so simple to make. I was so excited!



I give up!

Yes, I said it. I give up on the SC diet! Gabe is miserable and not showing any positive signs from it, so I give up. We are going to stay GFCF and of course, organic and use many of the SCD recipes for health reasons. I am actually thinking of trying to make Gabe the yoghurt also. Might as well, right? lol
 I honestly think that there is no reason to live if you are not happy with life, and Gabe not being happy is not ok for me. His happiness is the MOST important thing in this world to me. I love him more than anything and will try just about anything to recover him from this terrible thing called autism, but I will NOT sit back and let him be un-happy. It would be one thing if he was doing amazing new things and could poop everyday without the use of a laxative, but sadly that just is not the case.

I'm sure that SCD works for many, many people and I do think it has many great qualities. It just doesn't work for Gabe. We gave it almost a full 3 month trial period. The weirdest thing is, we let Gabe get his favorite pizza from a local place called Monical's (they make a GF crust and we don't get cheese) and we saw NO reactions to coming off SCD. If anything, he pooped 4 times in the last 2 days and they were really "normal" consistency again (his poops have been TERRIBLE, smelly and gritty from all the nuts and nut based flours on SCD). I can't explain why except that maybe his body just really needed the carbs from the rice based pizza crust again. It is probably really hard for a 5yr old to have enough energy only eating nuts and meats like he was. We are really hopeful that by doing a combination of really healthy meals from both GFCF and SCD we can still heal Gabe's gut and keep him the happy, healthy little boy that we know and love.  Life is all about balance.  :)

Tuesday, February 9, 2010

Running low on motivation for SCD....

 We are almost to our wit's end with the SC Diet. Gabe is not doing better, if anything, he may be worse off than before. His constipation is back full-force and I know he is just miserable. We have had to give him laxatives almost every day or every other day. His teacher says he is still the wonderfully sweet and loving little boy at school, but his focus and attention span have gone away completely. That was really sad for us to hear because she raved about how great he was doing in those areas at the beginning of the school year when he was GFCF, low sugar and low carbHow can you do well on GFCF low sugar/low carb, but not do well on the SCD? You would think that he would excel on this diet.... autism sucks!!!

We have looked in to a few possibilities of why he would be struggling and have added all of his supplements back in to his diet that we had removed that were not SCD legal. He is doing a little better from those coming back, but I can't really attribute that to SCD. If anyone has any suggestions or experiences please feel free to share. I am open to all ideas at this point. lol
We are going to give the diet until the end of this month and then we may go back to GFCF again if there is no changes by then. Gabe is getting really tired of eating the same foods I think and It is far too time consuming and expensive of a diet to not see any improvements in two full months (will be 3 months after Feb.).
 

Sunday, January 17, 2010

More pictures to share!


Gabe and Mommy at the Indianapolis Zoo...last warm day of Fall.  :)




 
 Gabe at Turkey Run State Park...family Canoe Trip!




 
 My pumpkin at the pumpkin patch.  :)




 

 Gabey with Santa Claus when we went to pick out our Tree.





 Gabe and Mike canoeing  :)





                                          Gabe and I at the State Fair...this ride was HORRIBLE!




                                                                    Monkey Gabe!





                                                          Love him so much!






                                                      Floatin' down the Creek.  :)

Epsom Salts = Greatest gift ever created on Earth!!

I LOVE EPSOM SALTS!!!!!!

They are probably my most treasured item that I buy from Wal-Mart right now. Even over the few snack items that I buy to eat when Gabe goes to bed at night.  ;)

I will explain why I love them so much. We have randomly been giving Gabe E.S baths for well over a year now and they use to wind him down for bed well, but never made a difference on how long he slept at night. Well, since we started the SC Diet, Gabe has been having a LOT of sleep issues. Staying asleep ,even with his clonodine, was never happening for him. He would wake up at all times of the night and once he is awake he usually won't go back to sleep at all. We gave him ES baths the first week or so of the diet about every other night and he was sleeping amazingly well like 9 or 10 hrs a night. Gabe has really been in to taking showers lately and so we started just letting him take a shower every night instead of a bath. We totally missed the connection of why he all the sudden stopped sleeping well....the epsom salts! Duh!! So, Thursday night we started giving him ES baths again and BAM! He is sleeping at least 9 hours a night with NO problems. It was really taking a toll on him not getting quality sleep that he was so accustomed to before and also on us too! I think this week at school will be SO much better for him!

We are also going to order Super Pro Bio (Kirkman), Threelac and S Boularddi again to go after the yeast. I don't think the diet is quite enough to kill it on it's own. He needs the extra probiotic help!  He is also on Nystatin currently. I think with all of that he should be in pretty good shape. Then hopefully we will start to see some benefit from all of this hard work we are doing for SCD! Right now, it's a little discouraging for us I must admit.  It's so frustrating to do all of this and not see any differences in Gabe. Well, aside from the fact that he is pooping at least once a day, if not 2 or 3 times. Before SCD, he had severe constipation issues and would go 2 or 3 days without pooping if we didn't give him milk of magnesia.

On a happier note, here are some newer pics of the Fam.    :)





Mike, Gabe, and I on Christmas Day.  :)

Wednesday, January 6, 2010

Starting to branch out.....

We have decided to branch out and add a few new things in to Gabe's diet. He has been SCD now for over a month, so I think it's safe to add some new foods. I think we may be giving him too much meat in his diet. Dr. H said that sometimes our kiddos have trouble digesting proteins. (UGH!) If it isn't one thing, it's another. I swear!  :(  I'm really hoping that isn't the case for Gabe since that is his main food source on this diet. He isn't a real big veggie eater yet, although he is eating WAY more foods than he ever was this time last year. We are working on adding in new veggies.

I am going to make his monster cookies tonight, but this time I am going to add in some cashew butter to see how they turn out. Maybe that will spice them up a little bit more for something new and different! I feel so bad for Gabe because he seems to be getting really sick of eating the same foods. Strange that he use to ONLY eat the same 5 foods every day all day long and nothing else and now he gets tired of it once he realizes how great variety is! lol

I will try to post some pictures of how they turn out! I am waiting for cookie monster to fall asleep before I start baking!    :)

 

Saturday, January 2, 2010

4 weeks on SCD :)

As of tomorrow, Gabe has been on the SC Diet for a whole month. Time flies when you're having fun, so they say.   ;)

We are really starting to get in to a routine with everything and it is definitely getting MUCH easier. It is still very time consuming compared to GFCF, but that is just because you are constantly making something from scratch and there are only so many hours in the day. It's been nice that Mike and I have both been home off work the past two weeks and Gabe has been out of school for break. We even ventured out of town to visit Mike's family in Cincinatti for two days. Getting brave aren't we? lol

We still haven't been seeing much progress other than the improved bowels that I mentioned last time. No need to go in to detail on that again.  I will spare you.  ;) We realized two days ago that we were using Sea Salt that was Iodinized and had a bunch of added illegal stuff (dextrose, Silicon Dioxide, etc.). We didn't even think to check sea salt for added sugar. We definitely will be checking everything more closely from now on.

We also got a HUGE lucky break by getting in to a local DAN doctor who is wonderful. She usually has a 9-12 month wait, but since we have already been seeing one of her colleagues she got us in the very next day for a consult. It was so our lucky day or something. Her name is Dr. Mary Lou Hullsman. She recovered her daughter from autism a few years ago and has personally done the SCD diet for her family. We really like our current DAN dr., but his son is only 3 and they haven't tried SCD yet due to food issues. So, speaking with Dr. Hullsman was awesome since she could really relate to our questions specifically about the diet. She also noticed that Gabe's pupils were dialated and that is usually a symptom of adrenal fatigue. We bought a supplement from her office that helps with AF called Cytosyme-AD. Hopefully that is a big key to helping Gabe. We'll see I guess. She also said that we need to resume all of Gabe's probiotics that we previously had him on before starting SCD. We thought we needed to remove them since they weren't SCD legal, but she said that he really seems to need them to kill of the yeast. The diet alone isn't really getting rid of it as fast as we need it to. She thinks that if we do that we will really start to see great benefits from the combination of the diet and probiotics. We had him on ThreeLac, S Boulardii, Pro-bio Gold and Nystatin to fight yeast before and now he is only on Pro-Bio Inulin Free. It was really nice to hear that the supplements won't affect the diet enough to have to stop taking them. Gabe is clearly a kid who needs probiotics to fight bacteria off. It's funny how having a fresh set of eyes and ears can help you that much. We were really, really happy to have gotten the chance to meet with her. I would really recommend always getting a second opinion every so often from another DAN dr. if you can. I know we will in the future!

I will keep updating on our progress as much as possible. Hopefully I will have more exciting things to post soon with our new plans.  :)

Friday, January 1, 2010

SCD Pizza ~ John's Recipe #2

Tonight I decided to branch out and try a new recipe for Gabe. He seems to be getting tired of eating plain meats now. We figured we wouldn't try too many new foods until we got his yeast under control better, but I can't blame him for getting sick of pork chops, steaks, and chicken breasts. lol

Here is the pizza recipe we tried and a picture of how it turned out. The picture is only half of the original pizza as Gabe was already busy eating it. haha He ate the whole pizza in one sitting, so I think next time I will double the ingredients and have some left-overs for another meal.

-1/2 cup almond flour
- 1 tsp salt
- 1 tsp extra virgin olive oil

- 1 egg
- italian spices (oregano, basil, pepper, garlic, onion, etc.) 

Mix all ingredients together and add more flour to mix until mixture forms a dough ball.  Grease pizza pan with olive oil and spread dough out in pan. Don't worry if the pizza doesn't fill the whole pan. Preheat oven to 350 and throw pizza in while the oven is preheating. This will set up the crust and once the oven has pre-heated the crust should be golden brown and ready for the toppings to be added.
Add toppings and bake at 350 for 10 minutes.

**We used homemade pizza sauce (tomato paste, water, italian spices & salt) and I fried up some hamburger meat. We don't use any dairy products yet, but they do recommend Havarti cheese on top if you want or fresh veggies. Gabe loved it, we hope you will too!  :)

Here's a picture....


Deanna's Midas Gold Pancake/Waffle Recipe ~ SCD

 For breakfast we have been making Gabe waffles, Pancakes, or Sausage patties. He, of course, prefers the waffles or pancakes.  :)   I thought I would post the recipe we use (which he loves) that is so user-friendly and quick! We make Gabe a honey syrup by mixing a little bit of spectrum shortening with the honey and microwaving it for a few seconds. It makes the honey a little less over-powering I think.



MIDAS GOLD PANCAKES/OR WAFFLES
by Deanna

1 cup almond flour
4 eggs
2 tablespoons honey
1 teaspoon vanilla
1/4 teaspoon salt
1/4 teaspoon baking soda

Beat eggs in a mixing bowl with a large whisk. Add honey and vanilla and beat until smooth. Add almond flour, salt and baking soda and mix well with whisk.
Pour in hot waffle iron and cook according to waffle iron instructions or cook like pancakes.


Here is a picture of the one's Mike made this morning.....